Amelia deserves to live
Posted: 17 January, 2012 Filed under: Ableism, Disability, Physical health, Prejudice | Tags: Ableism, Amelia, Bad things, Bigotry, Children, Death, Developmental Disability, Disability, disabled people, Evil, Family, Illness, Injustice, Intellectual Disability, Kidney transplant, Kidneys, Life, Love, Mental Disabilitiy, Nephrology, Oppression, Organ donation, Organ transplants, Physical disability, Physical Illness, Pro-life, PWD, Quality of life, Suffering, Wolf-Hirschhorn Syndrome, WTF Leave a comment »Amelia is a three-year-old girl who is very sick. If she doesn’t have a kidney transplant, she will probably be dead within a year, perhaps less. Luckily, her parents have health insurance. Luckily, she has a large family who are willing to donate a kidney to save her life, so there’s a good chance one of them will be a match.
Unluckily, her doctors are bigots, as her mother has written about here. Amelia has Wolf–Hirschhorn syndrome, which means she is mentally retarded, among other things. Her doctors have decided her “quality of life” is too low to justify giving her the operation she needs. So they’re going to let her die.
I don’t know if there’s anything you or I can do about this (besides pray), but I think people should know. n the offchance anyone reading this knows anyone who can help Amelia and her family, please contact them. Amelia is a human being. She deserves to live. There is no reason to believe that she is unhappy with her life or doesn’t want to live.
Luckily her parents are good, loving people who will fight for their little girl and I really hope they win.
Amelia is a person. She has a right to live. What is happening to her is so, so wrong.
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